Fetal Echo Cardiogram

The fetal echo cardiogram on Tuesday at Sick Kids went fine.  No problems at all.  So that's good news.  The medical fellow who did the ultrasound was 16 weeks pregnant with twins...can you imagine how hard it would be for her to have to tell people that things aren't good with the heart while she's pregnant herself?  A tough spot to be in.

So we're glad that went well, because if it hadn't, we're pretty sure that the possibility of using any treatment options/end results liver transplant would have been eliminated.

On another note, I've been looking for blogs from anyone who has documented their time in treating a baby with OTC.  I havn't managed to find any.  I have found a few blogs that talk about treating their children with other urea cycle disorders (of which OTC - ornithine transcarbamylase deficiency is one of six urea cycle disorders, and the most common of the six). 

Even though it's not exactly the same (but similar) I found Katie who posts about her experiences with her daughter (who will be 1 in August), who has another urea cycle disorder called Carbamoyl Phosphate Synthetase 1 (short form is CPS-1).  They had a liver transplant done at 4 months of age, and she has many posts about the reality of the disorder and the reality of life after transplant.

In case you are interested in taking a look at her blog, it is at:
http://from-magerks-to-i-dos.blogspot.com/

Comments

  1. KateJune 30, 2011 at 1:47 PM

    So happy all went well with the echo!!

    ReplyDelete
  2. AnonymousDecember 6, 2022 at 1:33 AM

    The program will pick five completely different numbers on every reel in the intervening time when the participant spins the wheel. All potential prizes are added to balance immediately and mechanically. This course of is identical each for gamers who are half in} with actual cash or simply utilizing free spins. Video slots are distinctive end result of|as a outcome of} they can function a big number of reel sizes 1xbet and paylines (some video games function as much as} 100!).

    ReplyDelete

Post a Comment

Tell me your thoughts. I love to hear from readers. Say hi! :)

Popular posts from this blog

Week One at Toronto Sick Kids. A recap of Oct 24-30th.

Image
In memory of our baby Kyle: Oct 24, 2011 - Nov 8, 2011.  We had 15 days with him.  This is a summary of the first 7 days. As many people reading this know, I was pregnant with a baby boy affected with a severe mutation of Ornithine Transcarbamylase Deficiency, which means that he can't metabolize protein properly.  Protein gets changed into ammonia, but it doesn't get past that point in affected children.  The ammonia builds up, causing potential brain damage, and eventually causing the organs to shut down. We were going to do medical treatment to be followed by a liver transplant.  We weren't convinced we would get to the point of transplant, because the treatment would be difficult to manage.  But we were willing to try.  We were doing it day by day.  We were going to try, and if he made it, we would go buy everything that was needed. I was due Nov 14, or Nov 11 based on ultrasound.  I've had two previous full term pregnancies.  My daughter was born at 10 days ove
Read more

Making a Leap: Reducing Employment Hours to Increase Self-Employment

Image
Looking back to 2012, one of my goals was to increase my self-employment income to be more than 15% of my income for the year.  Three years later, I've surpassed this goal!  Although we aren't at the end of 2015 yet, I can estimate my numbers quite well.  There is a possibility that my self-employment income will be more than I have forecasted. Primary job: (25 hours/week) 2012: 79% of income  2013: 75% of income  2014: 80% of income  2015: 70% of income  Secondary job: (average of 5 hours/week) 2012: 12% of income  2013: 13% of income  2014: 10% of income  2015: 10% of income Self -Employment: 2012: 5% of income 2013: 11% of income 2014: 10% of income 2015: 20% of income Other Income: 2012: 4% of income (Maternity Employment Insurance during January) WOOT!! This year my NET self-employment income will be 20% of my total income.  I've grown business slowly, quite purposefully.  I havn't advertised due to fear of growing too fast, and not hav
Read more

1 in 100 Canadian Births Conceived With IVF

This past Saturday, the Globe and Mail newspaper had an article regarding PGD - pre implantation genetic diagnosis.  I plan on writing more about that topic in the future, but in the meantime, one of the statistics that was in the article was that approximately 1% of the live births in Canada were conceived via IVF - in vitro fertilization.  The 1% quote is pretty close.  In 2009, there were 380 863 births in Canada , and 3160 of these were via IVF based on the statistics stated below.  This is an overall rate of  0.83% of births were via IVF, which can easily be rounded up to state approximately 1%. I know a number of people who have used IVF in order to get pregnant, but I had never considered the overall percentage before.  I'd share one of cute pictures of friends children who have been conceived by IVF, but even for those who are open about the conception, it feels a little too public to request permission to use a picture. One in one hundred children being born ar
Read more